Tag: food allergy awareness week

Update to my “Generic Epi-Pen Post”

A few weeks ago I posted a full article that compared the generic “Adrenaclick Auto Injector” to the Mylan Epi-Pen.  I mentioned that our insurance company automatically filled this generic auto injector in lieu of the mainstream Epi-Pen as of January 1st, 2017 when all of the insurance companies changed their RX coverage plans for the new year.  I discussed in quite length the pros and cons, and noted that I did not have any confidence in this product because I have not had to use it.

As a follow up here is what I have found:

  • It took 6 weeks for me to receive the several “Trainer” pens I ordered online from the website I discussed.  To my dismay, the trainer pen when pushed into the thigh, does not make a “click” sound and the spring in the device does not budge at all.  It didn’t make me feel like this was the reality of how this pen would actually work if I was using this in an emergency situation.
  • I realized the actual auto injectors when dispensed, will not retract the needle once you remove the injector from the thigh after the medicine is administered.  I think this is dangerous and how does one dispose of this?
  • Although I’m not pleased with either of the two points I mentioned above, this pen was still a $0 co-pay and although not easy to use, I’m sure it would work well if need be.

Again, these thoughts are 100% my opinion.  After all of my research and actually trying to practice using this generic Adrenaclick trainer product, we have decided not to let our boys carry these pens.  Additionally, we have not taken them to our son’s school either.  I just don’t feel confident with this product.    This is because it’s so vastly different from Mylan’s Epi-Pen and Auvi-Q, and my concern is that a caregiver of school employee may not know how to properly use this product in an emergency situation, when time is of the essence.

Last week was my boy’s annual food allergy appointment at the University of Michigan where they have been receiving amazing food allergy treatment for the last 6 years!  Our doctor wrote new scripts for each boy and stated on the script “Generic for Mylan 0.3mg Epi-Pen.”  I then filled these scripts at the pharmacy and the cost was only $35.00 for 2 two packs!  The generic Mylan Epi-Pen is actually the same auto injector but significantly less in price.  In addition, I have used Auvi-Q’s Patient Affordability Program to order the new injectors for each of my boys!  This is paid for 100% by Auvi-Q and is a home delivery prescription service.  I can’t say enough wonderful things about this program!  We have always be a HUGE fan of Auvi-Q and we’re thrilled they are back on the market!  As a mother of 2 boys, the Auvi-Q’s are small enough to fit in their pant or jacket pockets.

At the end of the day, every family needs to do what is best for them specifically.  Personally, I don’t feel comfortable carrying a life-saving device that I’m not 120% confident with which is to be used as the first line of defense during an allergic reaction.  I encourage everyone to do their own research and make an educated decision.  The bottom line is that it’s wonderful that we, as food allergy families, now have more choices when it comes to epinephrine.

Have a great weekend!

~Erika

 

Recent Delta Flights with Food Allergies

Delta plane

After my post a few weeks ago about the challenges we had flying with our nut allergic boys on United, I thought I would post a positive experience we recently had flying with Delta.  Within the last week, we took a total of 4 Delta flights with our peanut, tree nut, and dairy allergic boys.  Although we have primarily flown on Delta with our boys over the last 8 years, and we travel quite often with our sons, I wanted to share this very positive experience.

As always, I notified Delta by calling their Sky Miles number that we would be traveling with our nut allergic children on our upcoming tip.  The representative assured me that no nuts would be served on the aircrafts during our trip.  I hung up the call with a sense of relief and felt good about our upcoming vacation.

On both of the travel dates I reiterated to the check in Delta representative that our children had nut allergies.  She/he stated this was noted in the system and the flight crew would be notified of this information.  Upon the aircraft leaving the gate on all of our flights, the head flight attendant made an announcement stating, “We will not be serving peanuts on the flight today because a passenger has a serious nut allergy…instead we will be serving our Bischoff cookies and pretzels…thank you for your cooperation.”  This was music to my ears and both my husband and I were relieved.  However, there is of course still the possibility of passengers bringing their own nuts and nut products onto the aircraft.  Thankfully my children’s nut allergy is not airborne so this is never an issue.

Thank you Delta for another safe and pleasant flying experience with our nut-allergic boys!  I appreciate the effort both you and your staff continue to exhibit to keep food allergic passengers safe on your aircrafts!  We WILL definitely be traveling with you again in the future!

~Erika