Tag: anaphylactic reaction

Generic vs. Milan’s Epi-Pen

A few days ago I picked up a refilled prescription for my oldest son of what I thought was going to be Mylan’s  Epi-Pen 0.3 mg twin auto injectors.  This is what we’ve been accustomed to using since the big recall happened with the Auvi-Q auto injectors fall of 2015.  Despite all of the controversy with Mylan, and the increase in pricing for the Epi-Pens, we have unfortunately had to stick to this prescription, as our insurance RX program never filled a generic option in the past.

To my surprise, when I arrived home and opened up the bag from the pharmacy, I receive 2 twin packs of the Authorized Generic form of the Adrenaclick, 4 auto injectors 0.3mg manufactured by Lineage Therapeutics.  This generic version was apparently introduced to the market back in June of 2013.  It boggles my mind why it was not available to me as an option until now???

At first, I was really UPSET because the pharmacy didn’t notify me that my prescription for Mylan’s Epi-Pen had been replaced by the Adrenaclick generic.  After a few minutes and once I cooled down, I realized it was exciting to finally see a “generic form of the life saving auto-injectors!”

My excitement quickly turned to ANGER again when I realized that the devices did not come with any type of training device!  What???  The box that contains the twin injectors has a spot for a trainer, but NO trainer was included in the box!  I was LIVED to say the least!

I quickly went to my laptop and typed in the manufacturer’s website which is http://www.epinephrineautoinject.com/contact_lineage.php.  The site contains a link which allows you to order ONLY 1 training pen at a time!  There is a 1-800 number you can call to order more than one training pen at a time.  Of course, I called it right away thinking about all of the people in our lives that we would need to train how to use these generic auto injectors- school staff, coaches, kid sitters, our boys of course, myself and my husband, friends, grandparents, aunts and uncles, etc…the list goes on and on.

After being on hold for approximately 5 minutes, a nice customer service lady answered my call, and when I told her that I would need to order at least 4-5 trainers, she mentioned they were backordered by 4-6 weeks!  She suggested I go to the website and individually order 1 trainer at a time.  This is what I did…I ordered 2 in my parents names, 1 in my name and 1 in my husband’s name, 1 in my sister’s name, and 1 in my brother-in-law’s name…WHAT A PAIN IN THE BUTT!  Needless to say, we’ll see when these trainers actually arrive!

So, all in all, it’s absolutely wonderful that my insurance RX program finally gave me a generic option!  It appears that consumers dealing with anaphylaxis do have more prescription options available now. Here are the PROS & CONS broken down for you:

PROS:

  • Price- my out of pocket expense for 1 pack of twin injectors was approximately $15.00 compared to hundreds for Mylan’s Epi-Pens
  • Size- generic packaging of auto-injector is approximately a 60% reduction in size compared to Mylan’s Epi-Pen.  Since we have 2 boys and they do not carry a purse, it will be easier for them to carry these in their pockets

CONS:

  • Trainers do not come with auto-injector prescription
  • Trainers must be ordered separately on manufacturer’s website
  • Only 1 trainer can be ordered online at a time, for more you must call customer service hotline
  • If you want more than 1 trainer, these orders are on back order for 4-6 weeks!  Unacceptable!
  • It took the pharmacy over 5 business days to fill the script…I’m assuming because Meijer does not keep this generic version on their shelves.  This was frustrating and thank god I had extras and didn’t need it immediately!
  • Trust- I don’t trust the generic as I have not had to use it yet
  • Quality- I do not know the quality of the generic
  • Learning Curve – it is cumbersome to re-train everyone in our life with new auto-injectors- cannot train them until trainers arrive
  • I have 4 new generic auto-injectors that cannot be used since we do not have the trainers…our boys will need to practice on trainers 1st before we feel comfortable with them carrying these devices

While there are currently more CONS than PROS at this juncture, I’m confident once we have an opportunity to familiarize ourselves with this generic, the PROS will begin to outweigh the CONS.

If you have any experience using these Lineage Generic devices I would love to hear your feedback!  Please contact me or leave feedback in the “comments” section of my post.

Once the trainers arrive in the mail I will update this post with feedback regarding re-training everyone/ease of use.

~Erika

 

ALDI is Rivaling U.S. Grocery Store Chains with Low Cost Organic and Allergy Friendly Foods

 

aldi-corporate-2

Last year I authored a post about how I started shopping at the German-owned grocery chain ALDI and how I absolutely LOVE IT!  ALDI is one of my favorite stores to grocery shop at because it offers many low cost organic produce options.  They also have a corporate policy to sell foods that do not contain certified synthetic colors, partially hydrogenated oils, MSG from all its private-label products, pesticides, synthetics, and hormones.   ALDI  is constantly increasing their line of Gluten Free Foods, which are private labeled under the Live G free name to keep costs low.  Many of the Live G free foods are also free from many Allergens!  And I might add- DELICIOUS!

aldis

I have spoken to many of my friends about the benefits of shopping here and unfortunately the buzz I have received on the street is that many people think it’s a “low-income” type grocery store.  They are just not informed about the many wonderful products this store sells and the fancier foods they carry to compete with the consumers that frequent Whole Foods.  They now carry higher end specialty products such as artisanal cheeses, quinoa, coconut oil, and smoked salmon according to a Business Insider article.

In a recent press release from ALDI corporate, the Vice President of their Saxonburg Division stated, “ALDI has a different style when it comes to grocery shopping and that differentiation has helped make us one of the fastest growing retailers in the US,” said Hart.

ALDI is currently in the midst of a huge expansion plan in the United states.  By the end of 2018, it will bring fresh and high quality groceries to more than 45 million customers each month.  To reach its aggressive goals, ALDI will create more than 10,000 new jobs at its stores, warehouses, and division offices in the United States alone!  Once this $3 billion expansion is complete,  ALDI will have nearly 2,000 stores marking close to a 50% increase in only five short years!

ALDI has taken away market share from popular grocery store chains such as Walmart, Kroger and Whole Foods in the U.S.  They are able to continue to keep their costs low by offering consumers low pricing by limiting inventory to a lean selection of private-label items.  Whereas, traditional supermarkets  typically carry several different brands of a single product.  ALDI also invests far less in customer service and merchandising than traditional grocers.  Most of the store’s grocery items are placed in their shipping cartons to keep restocking quick and easy.  Consumers must pay a quarter ($0.25) deposit for a grocery cart (which you get back when you return the cart), bag your own groceries, and either bring your own grocery bags, or purchase bags they have for sale.

I certainly don’t mind taking a few extra minutes to bag my own groceries if it means heathy LOW COST organic foods free from chemicals for my family at a cheaper price!

If you haven’t shopped at an ALDI yet you are definitely missing out!  I encourage you to try it.  Here is a picture of many of the allergen-friendly products our family loves from ALDI’s:

290

In addition the products above my family also loves these allergy-friendly products from ALDI: pickles, many cereal varieties, hormone free turkey and ham lunch meat, all kids of fresh organic produce, whole wheat bagels and bread, jam, many varieties of Clancy’s chip products, coffee, organic spiral ham during the holidays, frozen wild mussels, canned albacore tuna fish, German red and white sauerkraut, hormone free maple bacon, frozen chicken fingers.  I like these paper products too: quart sized zip lock baggies, aluminum foil, paper plates, ultra strong paper towel and toilet paper.

Enjoy and have a great weekend!

~Erika

 

 

Food Allergy Letter Home to Classmate’s Parents Before School Starts

I have had a few recent requests for my “Letter Home to Classmate’s Parents.”  I recommend you edit this template to meet you child’s needs best.  Also, I recommend sending it to the principal/officer manager for editing and then have the final letter sent home to the parents of the students in your child’s class.  This letter should be from your school principal, not the parent of the food-allergic child.  Also, I don’t think it is a good idea to name your child in the letter.  Even though my oldest son has life-threatening food allergies to DAIRY, EGGS, PEANUTS, & TREE NUTS it wouldn’t be fair to the other students and too hard to enforce a classroom free of all of the above.  Nut oil lingers on surfaces and therefore a nut-free classroom is the best option.  We have taught our boys to be responsible for their food allergies and to always be diligent about proper hand washing, reading labels, etc.

Oh, and keep the letter to one front page…if it is too long and wordy parents won’t read it!  Believe me, some parents never read this unfortunately.

Please let me know if you have any questions about this letter.

~Erika

Letter Template:

August __, 2016

Dear (School Name) Second Grade Parents,

Your child has a classmate this year that has life-threatening anaphylactic food allergies to: all dairy, peanuts, tree nuts and eggs.  We want to inform you a little about food allergies to ensure a safe and healthy school year for everyone.

Over 14 million Americans have food allergies which affects 1 in every 13 children (under age 18) or roughly 2 students in every U.S. classroom! Allergic reactions can be life-threatening, and in rare cases deadly. While emergency treatment is available for allergic reactions, there is no cure yet. The only treatment for food allergies is strict avoidance of allergens. Sometimes a small amount of allergen can cause a deadly reaction.

Benadryl and an Epi-Pen will be kept in the second grade classroom for immediate access as well as the school office if your child’s classmate should have an allergic reaction.

Please do not send any peanuts or tree nuts (i.e. almonds, cashews, pistachios, walnuts, etc.), peanut butter or foods containing peanut/tree nuts or peanut butter to be eaten as snacks or for lunch in the classroom.  Healthy alternatives are: Soynut butter, Sun Butter, or Biscotti spread.  Additionally, please check all food labels for the listing of peanuts or various tree nuts, especially on crackers, cookies, and dessert treats.

I would ask if you’re bringing in food for a party or special event that might not be allergen-free, please let (Insert Teacher’s Name) know in advance so that a safe alternative option can be provided for the classmate with food allergies. (In particular, because homemade baked goods are so likely to contain traces of allergens from previous baking, they’re not safe options for children with food allergies even if they don’t contain ingredients with milk, nuts, and eggs.)

I would also ask that you discuss food allergies with your child.  Please ask them not to share or trade food with any of their second grade classmates during lunch time. Please also assure your child that children with food allergies are no different than other children.  They can do everything anyone else can.

Finally, if your child eats foods containing dairy, peanuts, tree nuts, or eggs for breakfast, please ask them to wash their hands and brush their teeth before coming to school.

Thank you in advance for your kindness and consideration. If you have any questions, please feel free to contact me at _______________________.

Best regards,

Principal ___________________

 

 

Northern Michigan Allergy Friendly Restaurant Reviews

petoskey sunset

Now that summer in Northern Michigan has kicked into full gear I felt it was important to enhance my local restaurant Allergy Friendly Dining List.  I have reviewed a total of 21 restaurants.  Most restaurants below come highly recommended by me.  However, I added a new category this season in which I review restaurants that I strongly feel are not safe to dine at with food allergies.  Please use your own discretion as these reviews are purely based on my opinion and personal experiences.

The reviews below are based on accommodating life-threatening multiple allergies to: dairy, eggs, peanuts, and tree nuts.  Please note that most of these restaurants are also more than capable of accommodating gluten, wheat, sesame, soy, and corn allergies.  Please ALWAYS remember to call in advance and ask to speak to the chef or restaurant manager to determine if the particular restaurant can accommodate your special dietary needs.  Additionally, I always provide our server with our 3 x 5 pink restaurant Chef Card that lists all of my boy’s food allergies.  This is an excellent tool to use, as restaurants are very busy during the tourist season/summer months, and verbal allergy communications can get lost in translation between your server and the kitchen staff.

I have tried my best to add these recommendations to the Allergy Eats App, which is not very thorough in Northern Michigan…this is still a work in progress for me however.  Thank you for your patience and Happy Summer!  Whether vacationing in Northern Michigan this summer or if you are a year long resident, I hope this list helps you and your food allergic family enjoy a more pleasurable and safe dining experience.

Here’s the list:

Downtown Petoskey:

1. Chandler’s A Restaurant – The Chef and staff is very knowledgeable and they get it!  Very accommodating!

2. City Park Grill – We dine here all of the time and they are amazing and understand the seriousness!  I commend the staff for always ensuring the food they prep is safe for our boys.  They even bake the chicken fingers for our boys now instead of putting them into the deep fryer.  Steer clear of the delicious biscuits however as they have butter and buttermilk I believe.  My children always ask for a cracker basket with oyster and soda crackers.

3. Twisted Olive Café – Chef Lee is wonderful and has been preparing food for our boys at various restaurants for over 6 yrs!  My boys love the mussels and fish entrees!

4. The Grain Train Natural Food Co-Operative – Lots of Allergen-free options/ready made in food cooler.

Restaurants to Avoid w/Food Allergies in Petoskey:

  1. Mitchell Street Pub – Although this pub has wonderful food, unfortunately they still allow their patrons to throw peanut shells on the floor throughout the entire restaurant.  AVOID at all costs if someone in your family has a PEANUT or TREE NUT ALLERGY.   SCARY!
  2. Eagles Club (private club) – We are members at the Eagles club in town.  Many of the chefs have told me over the years that their kitchen suppliers/distributors of food change often to keep food costs low.  They cannot guarantee any safety.  I’m glad they are always honest and they allow us to bring in food for our boys.  Although we rarely go here.  If you’re a member in a different town you can come in as a guest and it’s the best view in town, not to mention, right on the bike path.  Food is marginal at best but cheap drinks and food!

Harbor Springs Area:

1. New York – Chef Matt, and his entire staff are wonderful.  Jerry, a senior server with the New York is amazing.  Nancy too!  Our boys can even eat the bread here safely.  Chef Matt and his staff are extremely knowledgeable about how to safely prepare food-allergy friendly delicious meals!  We love this restaurant and it is a place we frequent with our boys.  The food is always delicious and service goes above and beyond!

2. Crow’s Nest – Chef Bob has been preparing allergen-friendly food for our boys for the last 5 years.  Folks HE GETS IT!  The food is amazing and Chef Bob and his cooks will even use a different flour dusting on his famous pan sautéed perch for our boys.  They cannot have the “Drake’s” batter which contains casein and he will lightly coast the perch in a flour mixture and then sauté it to perfection.  The staff is extremely knowledgeable about food allergies and it is always a pleasant dining experience without worry.

3. Bar Harbor – Although our boys cannot eat the cheese on their burgers the chef and staff understand cross-contamination and always allow me to read ingredient labels.  We bring our own Daiya cheese and my boys LOVE their burgers.  They cannot have the fries due to what goes into the deep fryer but the chips are safe!

4. The Fish – The restaurant owner and staff is very accommodating and have gone out of the way to make delicious healthy food for our kiddos.

5. Country Club of Boyne Seminole Pub – Chef Dean Grill is new to the Country Club of Boyne Team this season.  He is from LA and has quite an outstanding culinary resume!  Both Chef Dean and General Manager Claire are very educated on food allergies and cross-contamination.  There are wonderful!  I have met with Chef several times and he personally ALWAYS cooks my boy’s food.  The fries and homemade potato chips are safe and delicious.  My children have been able to enjoy cheese burgers here that are safe and delicious.  I just bring my own Daiya cheese and buns.  They go the extra mile!

6. Nob’s Nob Cafeteria – We are season pass holders at the Nub’s Nob Ski Resort and every fall the wonderful chef reviews the menu with me.  They are so incredibly accommodating and even take me back into their walk in freezer so I can review ingredients listings.  My children can enjoy the curly and straight French fries there which are popular items, hot dogs, hamburgers, grilled chicken and fruit.  Please always double check with the line chefs to make sure they change their gloves after touching cheese.  Also, double check the buns they use as I believe some of the buns my not be ok.

7. Teddy Griffin’s Road House – We dine here several times throughout the year sans kiddos!  However, the last time we ate here we showed our server, who has been with Teddy’s for over 15 year, our Restaurant Chef Card, and she assured us Teddy’s could safely accommodate multiple food allergies.  I had been a bit apprehensive about dining here with our boys due to a bad review on Allergy Eats.  Our conversation with our server changed my mind and hopefully we’ll try it soon.  Additionally, Teddy’s is under new ownership which can only mean positive changes on the horizon.  I will update this post once we dine here with our boys.

Bay Harbor:

1. Bay Harbor Yacht Club (Private Club) – The level of service and accommodations are incredible.  They exceed my expectations for safety, allergy safe options, quality of food and level of service.  Bravo!

Restaurants to Avoid w/Food Allergies in Bay Harbor:

  1. The Original Pancake House – Unfortunately this restaurant cooks just about everything in PEANUT OIL!  Yes, you heard me- PEANUT OIL.  Perhaps their supplier is the same at Chic-fil-A’s???  I don’t care how refined the oil may be, I’m not testing in with my anaphylactic peanut/tree nut allergic son!  Apparently peanut oil has a higher boiling point and is cheaper than most oils in a restaurant setting.  This restaurant even told me a few years ago that there is possibly peanut oil in the toasters because some of the bread may get brushed with it.  A child went into anaphylactic shock here a few years back before they had the peanut oil allergy statement on their menu.  Now they have allergy statements on every menu I believe.  AVOID AT ALL COSTS IF YOU HAVE A NUT ALLERGY

Boyne City:

1. Café Sante – Amazing and the really get cross-contamination and food allergies!  We dine here regularly & one of the restaurant manager’s worked for Disney in which they had several levels of food allergy education that were necessary for all employees.  During our most recent dining experience our server explained to us that the staff had just been trained extensively on food allergies and cross-contamination.  The serving staff here is even required to add food allergies into their computer system upon originally greeting their guests.   Thank you to the new Michigan Restaurant Law!  My youngest son LOVES the mules!  My boys can eat their homemade bread safely also which is amazing, safe and usually not the case in most restaurants.  The owners, managers and chefs here GET IT!  Thank you!

Boyne Falls:

1. Mountain Grand Lodge – Although we did not dine here during our last visit I inquired with the restaurant manager and they suggested they were fully capable of accommodating multiple food allergies to ensure the safety of our children.

Charlevoix (We have not explored too many restaurants here with our boys)

1. Terry’s Place – We attempted to eat here with our boys on the way home from the Traverse City airport during May 2016.  I called and spoke to the gatekeeper who answered the telephone.  I mentioned that our 2 boys have life-threatening food allergies to dairy, eggs, peanuts & tree nuts.  She stated that “It would be very difficult to accommodate you here because we use peanut oil to sautee all of our fish in and there is dairy in many of the entrée sauces.”  She did state that their sister restaurant next door (The Villager Pub) could prepare our boy’s food and run it over.  I asked if the chef could simply prepare fish (ie white fish or salmon) for our boys and she said it would not be possible to bake, broil or grill it safely with olive oil as a substitute for the peanut oil.  This is really too bad they cannot accommodate food allergies at all.  Perhaps the person I spoke with was not educated well on how to accommodate all customers with special diets.  Oh, and did I mention this was a Sunday night during April, which is the off season in Charlevoix?  A perfect evening to try a new restaurant because the town was literally dead!  Eat here at your own risk!

Traverse City & Surrounding Area:

1. Siren Hall (Elk Rapids) – We recently had a late lunch here with our boys.  We sat at the bar and requested the bar tender review our Chef Allergy Card with the chef and offer recommendations.  Our boys decided on the grilled chicken with broccolini and muscles in a white wine, garlic and tomato broth.  Both were delicious and our boys were happy.  They have root beer on tap too which made the stop especially worthwhile because our boys love root beer!

2.  Red Ginger (downtown Traverse City) – This is a family favorite in our house.  If we’re in Traverse City with our boys we have to dine here according to them!  When you make a reservation the host will make a note in their computer system of your allergies.  The head chef here has a son who is on a strict gluten-free diet.  He completely understands the concept of safety and avoiding cross-contamination.  My children usually order vegetable sushi rolls and the chef prepares delicious panko crusted chicken fingers for them with a side of steamed green vegetables.  The food is delicious and their sushi is fresh and yummy!  This is definitely one of our favorite Northern Michigan restaurants and I hope you will try it also!  Thanks Red Ginger!

Subway Restaurants can all be accommodating- My boys can eat the white bread, ham, and turkey as well as veggie toppings.  I always request the sandwich makers use clean knives, new gloves, and put down several pieces of paper over the cutting boards in which to make my boy’s sandwiches…we usually bring our own vegan cheese and my boys can eat their yellow mustard in lieu of mayo (or I bring my own Joy O or Veganaise).

Please remember these comments are based solely on our personal experiences and are opinion based.  Feel free to message me if you have additional questions/comments regarding any of the restaurants mentioned above.

~Erika

Travel Update- Delta is the Best Allergy Friendly Airlines

Delta plane

I made a few posts several weeks back regarding various trips we have taken with our food-allergic boys and how well we were accommodated on Delta & United Airlines.

As I have mentioned before, we fly A LOT with our boys! We just returned from a recent trip last Tuesday in which we flew on Delta again.  I have to say that Delta completely understands the safety needs of their food allergic passengers!  On a flight from Fort Meyer’s (RSW) to Detroit (DTW) the head flight attendant made about 4 announcements, the first started as we were boarding the aircraft.  She stated, “There are two passengers with extremely severe peanut allergies.”  She then went on to say, “Out of consideration for the safety of these passengers we will not be serving peanuts on the flight today.”  This announcement was made about 4 times throughout the first portion of the flight.  It was wonderful!

Thank you Delta for yet another very safe flight at 30,000+ feet in the air.  Your company totally understand the severity and safety concerns of food allergic passengers while traveling by air.

I commend you Delta for being our #1 preferred airline and my family will continue to fly with you during our future travels.

Bravo Delta!!!!  We completely endorse your company for making safety of your passengers the priority!

Have a great weekend!

~Erika