Tag: allergies

Mylan Expands Voluntary Recall of More Epi-Pens & Epi-Pen Jr. in United States

Mylan Pharmaceuticals expanded its’ Epi-Pen Recall over the weekend to include the Epi-Pen Jr. and several more lot numbers below.  Many of us experienced a similar recall with the Auvi-Q Auto Injectors just over one year ago…this is all too familiar and extremely frustrating!  Please click here for the full article on Mylan’s website regarding the recall.

 

Generic vs. Milan’s Epi-Pen

A few days ago I picked up a refilled prescription for my oldest son of what I thought was going to be Mylan’s  Epi-Pen 0.3 mg twin auto injectors.  This is what we’ve been accustomed to using since the big recall happened with the Auvi-Q auto injectors fall of 2015.  Despite all of the controversy with Mylan, and the increase in pricing for the Epi-Pens, we have unfortunately had to stick to this prescription, as our insurance RX program never filled a generic option in the past.

To my surprise, when I arrived home and opened up the bag from the pharmacy, I receive 2 twin packs of the Authorized Generic form of the Adrenaclick, 4 auto injectors 0.3mg manufactured by Lineage Therapeutics.  This generic version was apparently introduced to the market back in June of 2013.  It boggles my mind why it was not available to me as an option until now???

At first, I was really UPSET because the pharmacy didn’t notify me that my prescription for Mylan’s Epi-Pen had been replaced by the Adrenaclick generic.  After a few minutes and once I cooled down, I realized it was exciting to finally see a “generic form of the life saving auto-injectors!”

My excitement quickly turned to ANGER again when I realized that the devices did not come with any type of training device!  What???  The box that contains the twin injectors has a spot for a trainer, but NO trainer was included in the box!  I was LIVED to say the least!

I quickly went to my laptop and typed in the manufacturer’s website which is http://www.epinephrineautoinject.com/contact_lineage.php.  The site contains a link which allows you to order ONLY 1 training pen at a time!  There is a 1-800 number you can call to order more than one training pen at a time.  Of course, I called it right away thinking about all of the people in our lives that we would need to train how to use these generic auto injectors- school staff, coaches, kid sitters, our boys of course, myself and my husband, friends, grandparents, aunts and uncles, etc…the list goes on and on.

After being on hold for approximately 5 minutes, a nice customer service lady answered my call, and when I told her that I would need to order at least 4-5 trainers, she mentioned they were backordered by 4-6 weeks!  She suggested I go to the website and individually order 1 trainer at a time.  This is what I did…I ordered 2 in my parents names, 1 in my name and 1 in my husband’s name, 1 in my sister’s name, and 1 in my brother-in-law’s name…WHAT A PAIN IN THE BUTT!  Needless to say, we’ll see when these trainers actually arrive!

So, all in all, it’s absolutely wonderful that my insurance RX program finally gave me a generic option!  It appears that consumers dealing with anaphylaxis do have more prescription options available now. Here are the PROS & CONS broken down for you:

PROS:

  • Price- my out of pocket expense for 1 pack of twin injectors was approximately $15.00 compared to hundreds for Mylan’s Epi-Pens
  • Size- generic packaging of auto-injector is approximately a 60% reduction in size compared to Mylan’s Epi-Pen.  Since we have 2 boys and they do not carry a purse, it will be easier for them to carry these in their pockets

CONS:

  • Trainers do not come with auto-injector prescription
  • Trainers must be ordered separately on manufacturer’s website
  • Only 1 trainer can be ordered online at a time, for more you must call customer service hotline
  • If you want more than 1 trainer, these orders are on back order for 4-6 weeks!  Unacceptable!
  • It took the pharmacy over 5 business days to fill the script…I’m assuming because Meijer does not keep this generic version on their shelves.  This was frustrating and thank god I had extras and didn’t need it immediately!
  • Trust- I don’t trust the generic as I have not had to use it yet
  • Quality- I do not know the quality of the generic
  • Learning Curve – it is cumbersome to re-train everyone in our life with new auto-injectors- cannot train them until trainers arrive
  • I have 4 new generic auto-injectors that cannot be used since we do not have the trainers…our boys will need to practice on trainers 1st before we feel comfortable with them carrying these devices

While there are currently more CONS than PROS at this juncture, I’m confident once we have an opportunity to familiarize ourselves with this generic, the PROS will begin to outweigh the CONS.

If you have any experience using these Lineage Generic devices I would love to hear your feedback!  Please contact me or leave feedback in the “comments” section of my post.

Once the trainers arrive in the mail I will update this post with feedback regarding re-training everyone/ease of use.

~Erika

 

The Little Things about Food Allergies Most People Don’t Even Realize

I was chatting with a few of my girlfriends yesterday over coffee about how our dog had recently been sick.  As unfortunate as it is, our two year old Wirehaired Pointing Griffon, Scout is a sock eater.  Yes!  He loves to eat our boy’s stinky socks when left on the floor!  No matter how often I remind the boys to put their dirty socks in the laundry bin, they still end up on their bedroom floor from time to time.  It’s been a challenge since Scout was a puppy.

Recently, Scout ingested something…we’re not sure what it was but he started acting peculiar last week and was not eating like normal.  I took Scout to the vet on Tuesday and thankfully after X-rays, he didn’t have an obstruction.  However, he did have lots of inflammation and irritation in his gut from whatever it was that he ate and then passed.

Long story short, our vet recommended we feed Scout canned dog food for the next couple of days since it’s more easily digestible.  The canned dog food at the vet’s office contained dairy and eggs so I had to take a pass.

I went to our local feed store and explained to the staff that I was looking for a canned dog food that didn’t contain dairy, eggs, or nuts.  We had about 3 people, including myself, reading every canned dog food label in the entire store.  Finally, we found a grain-free lamb dog food that was dairy, nut, and egg free.  To top it off, Scout loved it thank God!  And yes, Scout’s normal dried dog food is dairy, egg, nut and grain free too just in case you are wondering!  He’s on basically the same diet the rest of the family is on and he never complains!

My girlfriends couldn’t believe that I have to read the ingredient listings on the dog food labels.  Reason being, if Scout ate dog food that contained milk, eggs or nuts and then licked either of our boys it could mean TROUBLE!  Allergic reaction!  My friends said to me, “Challenges that you face on a daily basis with kids that have food allergies are not even on our radar, such as reading the ingredients on the dog food bag.”  For once, I felt like my friends actually understood what it was like to walk in my shoes.

This recent conversation with my closest friends struck a chord for me…my brain went into overdrive as I started thinking about all of the labels I have to read on a daily basis on all of the products in our home and when I’m grocery shopping.  For example, shampoo, dish soap, laundry detergent, body lotion, makeup, chapstick, sunscreen, prescription medications, hand soap, kleenex, deodorant, cleaning supplies, dog treats (most of which contain eggs, nuts, and dairy), etc.  The list goes on and on….now I have a HEADACHE!  These are not even food items mind you!

I guess the point I’m trying to make here is that parents of children of food allergies obviously have to be diligent with food labels.   That diligence extends beyond to so many more products that we come into contact with daily.  Most people would have a permanent headache if they had to continually check everything the way that we do.  I wouldn’t change it for the world…I’m just trying to help people gain awareness about the challenges parents of children with food allergies face encounter regularly.

I digress…Namaste and have a wonderful weekend

~Erika

 

ALDI is Rivaling U.S. Grocery Store Chains with Low Cost Organic and Allergy Friendly Foods

 

aldi-corporate-2

Last year I authored a post about how I started shopping at the German-owned grocery chain ALDI and how I absolutely LOVE IT!  ALDI is one of my favorite stores to grocery shop at because it offers many low cost organic produce options.  They also have a corporate policy to sell foods that do not contain certified synthetic colors, partially hydrogenated oils, MSG from all its private-label products, pesticides, synthetics, and hormones.   ALDI  is constantly increasing their line of Gluten Free Foods, which are private labeled under the Live G free name to keep costs low.  Many of the Live G free foods are also free from many Allergens!  And I might add- DELICIOUS!

aldis

I have spoken to many of my friends about the benefits of shopping here and unfortunately the buzz I have received on the street is that many people think it’s a “low-income” type grocery store.  They are just not informed about the many wonderful products this store sells and the fancier foods they carry to compete with the consumers that frequent Whole Foods.  They now carry higher end specialty products such as artisanal cheeses, quinoa, coconut oil, and smoked salmon according to a Business Insider article.

In a recent press release from ALDI corporate, the Vice President of their Saxonburg Division stated, “ALDI has a different style when it comes to grocery shopping and that differentiation has helped make us one of the fastest growing retailers in the US,” said Hart.

ALDI is currently in the midst of a huge expansion plan in the United states.  By the end of 2018, it will bring fresh and high quality groceries to more than 45 million customers each month.  To reach its aggressive goals, ALDI will create more than 10,000 new jobs at its stores, warehouses, and division offices in the United States alone!  Once this $3 billion expansion is complete,  ALDI will have nearly 2,000 stores marking close to a 50% increase in only five short years!

ALDI has taken away market share from popular grocery store chains such as Walmart, Kroger and Whole Foods in the U.S.  They are able to continue to keep their costs low by offering consumers low pricing by limiting inventory to a lean selection of private-label items.  Whereas, traditional supermarkets  typically carry several different brands of a single product.  ALDI also invests far less in customer service and merchandising than traditional grocers.  Most of the store’s grocery items are placed in their shipping cartons to keep restocking quick and easy.  Consumers must pay a quarter ($0.25) deposit for a grocery cart (which you get back when you return the cart), bag your own groceries, and either bring your own grocery bags, or purchase bags they have for sale.

I certainly don’t mind taking a few extra minutes to bag my own groceries if it means heathy LOW COST organic foods free from chemicals for my family at a cheaper price!

If you haven’t shopped at an ALDI yet you are definitely missing out!  I encourage you to try it.  Here is a picture of many of the allergen-friendly products our family loves from ALDI’s:

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In addition the products above my family also loves these allergy-friendly products from ALDI: pickles, many cereal varieties, hormone free turkey and ham lunch meat, all kids of fresh organic produce, whole wheat bagels and bread, jam, many varieties of Clancy’s chip products, coffee, organic spiral ham during the holidays, frozen wild mussels, canned albacore tuna fish, German red and white sauerkraut, hormone free maple bacon, frozen chicken fingers.  I like these paper products too: quart sized zip lock baggies, aluminum foil, paper plates, ultra strong paper towel and toilet paper.

Enjoy and have a great weekend!

~Erika

 

 

Recent Delta Flights with Food Allergies

Delta plane

After my post a few weeks ago about the challenges we had flying with our nut allergic boys on United, I thought I would post a positive experience we recently had flying with Delta.  Within the last week, we took a total of 4 Delta flights with our peanut, tree nut, and dairy allergic boys.  Although we have primarily flown on Delta with our boys over the last 8 years, and we travel quite often with our sons, I wanted to share this very positive experience.

As always, I notified Delta by calling their Sky Miles number that we would be traveling with our nut allergic children on our upcoming tip.  The representative assured me that no nuts would be served on the aircrafts during our trip.  I hung up the call with a sense of relief and felt good about our upcoming vacation.

On both of the travel dates I reiterated to the check in Delta representative that our children had nut allergies.  She/he stated this was noted in the system and the flight crew would be notified of this information.  Upon the aircraft leaving the gate on all of our flights, the head flight attendant made an announcement stating, “We will not be serving peanuts on the flight today because a passenger has a serious nut allergy…instead we will be serving our Bischoff cookies and pretzels…thank you for your cooperation.”  This was music to my ears and both my husband and I were relieved.  However, there is of course still the possibility of passengers bringing their own nuts and nut products onto the aircraft.  Thankfully my children’s nut allergy is not airborne so this is never an issue.

Thank you Delta for another safe and pleasant flying experience with our nut-allergic boys!  I appreciate the effort both you and your staff continue to exhibit to keep food allergic passengers safe on your aircrafts!  We WILL definitely be traveling with you again in the future!

~Erika